Sanctioned by the National Ataxia Foundation (NAF)
Hi all... my name is Jonas Cepkauskas, and I'm the new (old) captain of this vessel. Let me explain. I was diagnosed by Dr. Gomez from the University of Chicago around 1995. At that time, he was at the University of Minnesota in Minneapolis. About a year later, after finding there was no ataxia group in the Chicago area, I decided to form one.
That was easier said than done, as social networking wasn't around yet. However, with hard work and perseverance, our first meeting was held at St. Francis Hospital in Blue Island. I continued to run the group for about 6 or 7 years, and had to step down.
Craig Lisack, and then Dick Carr took over, and meetings were moved to Good Samaritan Hospital in Downers Grove. The time has come once again to hand over the reigns ( this happened about 2010 or 2011). With some new ideas, and a new outlook, we hope to meet as many of you as possible.
We meet on the 3rd Sunday of odd numbered months.
BECAUSE WE'RE ALL IN THE SAME BOAT!
If you think you know all about support groups and what they do, you don't know US!!!
Please join or update contact info for our news list, as we are going to nix the newsletter. This website will be our primary means of communication, news, and updates. Your information is safe with us.
ABSOLUTELY NOTHING like you envision.....
We are support, education, information, compassion, understanding, friendship, motivation, and lots of FUN!!